Aunt Chris Blog

What a day

Posted by: Aunt Chris on: August 3, 2011

What a night. As we through the day and night all signs were good. Even the Team was excited. We knew that the surgeons were at the donor hospital we knew some of the testing on site had been done. Then one of the doctors walked in the room with the sad face and said the child’s organs (heart/lungs) failed while they were in surgery. We were just devastated. It was the middle of the night, Riley was sleeping we were all holding our breath and it was over. Riley went home and we wait again.

Going home

Posted by: Aunt Chris on: May 14, 2011

Well the organs were not right for Riley so no transplant today ;(

What a long emotional day.  We know somewhere in the north east a family lost a child today so sad.  But it wasn’t meant to be for Riley today. 

Keep praying.   Thank you for the outpouring of support it was wonderful to see all the support the lil man has.  We got emails and messages from all over the world today.  

You are all Riley’s heroes.

ITS TIME!

Posted by: Aunt Chris on: May 14, 2011

They got the call early this morning “THEY HAVE ORGANS FOR RILEY” now hopefully they make it all they way to surgery and they don’t send them home. So pray that Riley gets his new lil heart and lungs today, all goes well and he lives a very long very happy life.

Updates will be posted on the blog pages and on Riley’s Facebook page.

Stay tuned…. PRAY

Organ Donation Awarness Month

Posted by: Aunt Chris on: April 6, 2011

April is Organ Donation Awareness Month.  Carol, Darren and Riley went to CHOP for there media event to show how important organ donation can be.  Especially to our lil man Riley.

CBS News (click link to see story)

ABC News (click link to see story)

We hope that this will provide awareness to others on how important organ donation is to save the life of another child.

Stay tuned.  I know I missed posting Riley’s Birthday.

Also, Hero’s on Wheels is coming up soon.  Check the Events Calendar

March Fundraisers

Posted by: Aunt Chris on: March 21, 2011

Saturdays fundraisers for Riley were a great success.

 Saturday morning Mackenzies Karate had a Kicks for Riley and a Family fun day.  Thank you to Master MacKenzie, Ken, for all you do for Riley and Christian.

   

  

After a fun fulled morning at Mackenzies we went to Harpers Pub in Clementon For the Smile4Riley Comedy Night.  Thanks to Doc and all the comedians who donated their time.  Thank you to all of you who came out to make the night a success.  Thank you to the owner of Harpers for his wonderful donation.

  

  

Our next and biggest Fund raiser is April 16th ~ Heros on Wheels

Check the event Page.

To See more pics on Riley’s Fan Page on Facebook.  Link is on the front page of our site.

March News

Posted by: Aunt Chris on: March 3, 2011

Hello all my Riley Readers, Stopping by for an update? 

Sorry I haven’t been back to update but we have been kind of crazy.  We had our first fundraiser for Riley in February we raised about $1,000.  Our next event is the Smile4Riley House Comedy Night at Harpers Pub in Clementon; check the Calendar of Events page for more information.

We have posted two wishes on Wishuponahero.com  you can find them by searching Smile4Riley.  Wish Upon a Hero has been a wonderful asset to Riley.  Dave & Ryan are sitting on our committee they help us with our Fundraising initiatives and bring lots of great ideas to the table.   They have helped us to set up the Smile4Riley Charity Builder Site on Wish which enables us to take credit card donations and enables us to offer tax deductible donations.  If you haven’t check out the Wish Upon a Hero site yet, I encourage you to do.  Everyone can be a Hero big or small and that is a great place to start.

 Now back to Riley, one of our fellow Charity Builder Friends sent me a message she wants to put together a Video Card and a Get Well Book for Riley.  Her hope is to get cards and pictures from all over the United States and the world.  So break out the markers and the crayons and show Riley how much we support and love him.  This is the message from “Brighter Days”

The book will be made up of pictures sent by people (like you!) from all over the world. You or your kids can draw something about their lives, state, or whatever but I would like each picture to read something along the lines of “(state/country name) is thinking of Riley”. I think it would be cool to show just how many people do care about him from across the world. The video will be just like the book, so if you don’t have the means to physically send a picture, you can take a picture of yourself holding up the sign you created and it will be put into our video for Riley’s website.  If you want to see a sample of the video take a look at this truly wonderful –

http://www.youtube.com/watch?v=521Ucd69TW0

 Cards can be mailed to:

The Jansen Group
C/O MaryKate Jansen
366 N Broadway PHE 6
Jericho, NY 11753

Pictures for the Video can be emailed to:

mk.jansen@yahoo.com

This is such an easy request, spread the word lets see those pictures and cards.

Check back to the Event Page for the most current Riley Events and thank you for your continued support.

Aunt Chris

Meet Team Walmart

Posted by: Aunt Chris on: February 6, 2011

What a great day yesterday.  We met with Laura Morris, all the Managers and Associates who have joined Team Riley.  So much more then we expected.  We walked in and they quietly clapped for Riley, who turned around and walked out Silly Boy.  Uncle Lou got him to come back in the room with the promise of toys.

Team Riley Cheering him on!

Uncle Lou shows Riley the Toys

Riley checks everything out

Riley's Walmart

Team Walmart Sings to Riley

 

Cake From Riley's Walmart

Riley's new Friends Ken & Mike - Walmart Store Managers

Riley & his new BFF Ken Williams - Somerdale Walmart Store Manager

You can see more pictures on the Riley Fan Page on Facebook.

Don’t forget to join us on Friday, February 18th for our Quarter Auction.

Keep Praying.

Are you ready?

Posted by: Aunt Chris on: February 5, 2011

We are off and running to raise money to have Riley’s house re-built. Come and join us at one of our scheduled fundraisers (see the Calendar page) or make a donation on the donation page.

We are still holding out hope that Extreme Home Makeover may show up so be sure to sign our petition.

If you aren’t a Riley Fan yet be sure to click off the home page to get to our Smile4Riley Fan page.

What we need right now. Cash donations, gift baskets or gift cards for our fundraisers, and if you are not from our area and want to help with our “Hero on Wheels” event we are looking for items from YOUR local Harley Davidson Dealer. T-shirts, hats, key rings items that have your local Harley’s stores name.

Keep following along. Keep checking the calendar of events we are hoping to raise enough money to have Riley’s house by the summer.

As always, please pray we get Riley’s new organs soon.

Riley Is Home

Posted by: Aunt Chris on: November 12, 2010

Thanks for your prayers Riley had an uneventful cath.

Now we pray he gets his new organs soon.

Cath Tomorrow

Posted by: Aunt Chris on: November 9, 2010

Reminder – Riley will have his Cath tomorrow, keep him in your prayers. Riley needs a complication free cath to keep him stable until he gets his new heart and lungs.

Funny Story – If you ask Riley where his heart his he points to it. If you ask him if his heart is broken he nods yes. If you ask him are you getting a… new heart he nods yes. Smart lil boy.

 

Stay strong lil man. We love you.

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